Hi Arlene, I am in a similar situation. Have had the k pouch for over 35 years but now am fighting pouchitis for a little over a year and also have Crohn’s like symptoms to include mouth sores and joint pain when a flair up is bad. Never had this before. Dr. Rubin put me on a few things at different times. I tried xifaxin. It was good for a little while but did not really last as far as controlling the pouchitis. But it’s worth a try. I had no bad side effects with it. I tried budesonide pills for many months. It helped a little for a while but didn’t get rid of the pouchitis fully. Recently he put me on prednisone 60 mg which I tapered down and flagyl. I think this helped with my pouchitis symptoms but taking those 2 meds was extremely tough on my body in other ways. I don’t know if I could do it again. So far though, it has slowed down my pouchitis symptoms. I am hoping it lasts for a while. I have not tried biologics yet. I am cutting all dairy and gluten and have as little sugar as possible. Hoping it helps. Augmentin has helped me in the past and that is a good one to try as mentioned above.
I hope you find something. Please let us know how it is going. Thanks.