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Reply to "notes from a k-poucher of 40 years"

Had mine done at Mayo in 1975. For 37 years no problems that required a doctor and I stupidly did not even know any doctors who even knew what a Koch Pouch was. Then all of a sudden I couldn't get my tube in, not good! My opening had gotten too small to let the catheter in. The wonderful Dr. Beart , who got to Mayo a few years after my procedure and is now retired, went in and spread the opening out. Dr. Beart was not sure how long the fix would last as it was a very unusual problem, but it has held for 6 years. As I have gotten older I have to empty my pouch much more often and I am sick of doing it in public restrooms. That has been the toughest adjustment for me.

The ileostomy cap sounds really interesting! I am afraid that in a few years there will be no doctors that have any idea what to do with us!

This site was incredibly helpful and comforting when I ran into my troubles!! I remember several helpful and calming comments from Sharon and many others.

 

Thanks!!!!!!!!!!!!!!!!!!!! 

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