DGS
Wow! 40 yrs...amazing to hear.
I had my k pouch done at TGH in 1979 by Dr Cohen...at the time it was still considered at a human trial stage in Canada . I was #13! My lucky number.
It was supposed to be a 1 stage but through valve slippage and pouch slippage off of the wall ended up a 3 stage.
Other than another wall slippage (My body does not create adhesions like others so it just wouldn't adhere) in 1992 I was fine until 1999-2000 when necrosis developed behind the pouch and was nearly impossible to diagnose .
Many complications later I still have my baby fully functional and about to celebrate 39yrs.
Dr Cohen continues to teach the k pouch up until retirement rather recently but the generalization of the j pouch discouraged most future surgeons from taking it up.
The quality of life that this pouch has given me and so many others is incredible ...so sad that the newbies and medical world in general do not get it.
I have 1000 tricks of the trade but never dealt with major odour problems. Probably thanks to my semi-veggie French diet. It is the intake that decides the odour of the output.
Red meats are a major culprit so I generally keep away from them.
Congrats and stay healthy...maybe all of us pouchers will have a reunion one day!
Sharon