I had my J pouch constructed over a year ago included an ileus and 35 days in the hospital. To date have not had the take down as within a day of having the pouch constructed I am incontinence and my surgeon says u are likely to be that way but why wouldn’t u try ? and no further testing? Wonder if there is something or someway to confirm if this is the likely outcome.
I have gone to the pelvic floor clinic as suggested and they say muscles are good except at rest and not sure I feel anything no warning when I am having the leaking so at rest they say my anal sphincter at rest is wide open so I’m guessing the sensory nerve was damaged maybe during the construction of the J Pouch surgery
I never had any issues when I had the first surgery which was the end and then due to the drugs etc I had to wait a year for the pouch construction. I didn’t know how good I had it as this loop is awful and I never had any incontinence
It a great thing to say sure let’s hook it up and then I end up having no any control.
Right now still have the bag with the loop and wear a pad for mucus and water. I’m very depressed - is there not tests that can see if u are going to be incontinence
surgeon doesn’t seem to wante to do any testing so I’m most likely going to have another surgery to go back to an end and remove Jpouch as this leaking all the time is awful
Wish I never had the second surgery for this construction of the JPouch
If any one has any suggestions or a surgeon they would recommend please let me know
tried Imodium and she prescribed Lomotil need 6 a day and still drains some but get a terrible headache from it
live in Canada.