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Reply to "Not happy with Jpouch since the beginning - please help"

@Mpale033 I’m sorry you’re going through this. Hard-to-diagnose problems can challenge us very deeply. Sometimes they’re things that the usual tests can’t find, and somethings more than one thing is going on, creating a confusing combination of symptoms.

It does sound like you may have pouchitis, and the nighttime incontinence, the observed inflammation, and the partial response to CIpro+Flagyl all point to this. One possibility is that the Cipro+Flagyl worked reasonably well on the pouchitis but one of them caused side effects that created your incomplete relief. You could try Cipro alone to test that idea. Another possibility is SIBO, which would explain the bloating, or a small abscess or pouch leak which would explain the tailbone/hip pain (this might be easier to see on MRI than on a CT scan), or perhaps a defect of some sort in the construction of your pouch.

Is there a more advanced health center they can refer you to? I suspect you may not get anywhere with the dietician.

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