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Reply to "No longer a J-Poucher after 20 years. Thank you for all your support!"

Yes, thanks Momacakes for sharing. I’m just shy of a year since takedown and this pouch has never worked. No fistula but a sinus tract, floppy pouch (I don’t even get this and I’m in the medical field ;-), and descending pelvic organs. I’m sick of the enemas and cervical splinting and endoscopic procedures just to struggle to empty. And now the back pain with possible infection. I felt so much healthier with the bag. Ate everything, slept through most nights, put on weight. There’s just so much trepidation surrounding knowing when to throw in the towel. I wish I had just stayed with the end ileo after colectomy and skipped this F&$king pouch. It has permanently altered my internal organs beyond my GI tract. Anyway, sorry to highjack your rant. Congratulations on making the leap and recovering! Can you tell me what the recovery time and process was like for you? I’m also in my 40s and have PSC so wracking up surgeries is worrisome if I ever need a liver transplant. But don’t know how much longer I can keep this thing.

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