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Nightmare at NYU

Hi All,

Due to deteriorating symptoms (posted elsewhere), and the inability to get a reasonably timed appointment, we decided it would be best to trek to the NYU ER and try and kick start the process.  What a mistake.

I know most non-GI clinical staff don't know what a J-Pouch is, but you'd think at NYU, they'd have a clue.  Had to explain my setup/situation to everyone, including the ER attending.  Fair enough. Just get my through the standard tests and to the GI consult.

Nope.  The CT scan was "clean" and so, at first, they refused to call GI or CR. After my wife and I stood tough, they relented and called.  They came back 5 mins later and said GI doesn't see an emergency and will not see me, as the CT is clean.  So much for listening to the patient, or being an IBD center.

So, we left.  And now I have no idea what to do. Still can't empty, so not eating.

Help?

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