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Reply to "Newbie looking for anyone with ileorectal anastomosis?"

It will be a two stage j pouch, first the dreaded bag and then plumbed back up to get the pouch working. I'm growing far too many polyps to safely keep removing, have had 200 removed over last 2 years after a rather sudden increase in the amount I grow and no signs of slowing back down, one of the mysteries of FAP. Do you get dehydration symptoms. Something that has helped me a lot is drinking a rehydration fluid developed by St Marks hospital in UK, think they called it electrolyte Mix. It's not the nicest thing in the world but cheap to make out of dextrose, salt and sodium citrate plus juice of your choice. Helps your kidneys extract as much fluid as possible despite missing the large intestines. Was also told to drink 2.5 litres a day 1.5 of which is the electrolyte Mix. Ready made dehydration sachets work too but not as effective so I'm told and cost a lot over time. It has made my bowel movements far easier and predictable, no constipated moments. I take two imodium before meals to slow the food down to give the small bowel as much time to get the nutrients. All advice from my lower bowel specialist.

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