Reply to "New with FAP and due to have surgery in June"

First of all, WELCOME! Glad you found us.

Secondly, educate YOURSELF and be your BEST advocate! I'd strongly suggest you goto a few sites, such as Mayoclinic.org and look here

http://www.mayoclinic.org/dise...inition/con-20035680

To get a good understanding of our lovely genetic mutation and what some possibilities are with it.

I just saw this, had a moment to respond quickly and will be back later.

Also there is no such thing as 1/5 chance of desmoids........desmoids come about due to genetics and where the mutation is and also each person's body is different, so I don't (personally) agree about saying 20% of us get them.......it could be more or less, but, yes they do occur and can occur.

In any event, make sure and educate yourself...........don't overdo it, do small portions at once because you'll overwhlem yourself.

We are all here for you!

Charlie

3/16/161:39 PM

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