Welcome! We are all here for one another and if you have questions, ask! We are all here to help.
You definitely need to keep up the surveillance for desmoids, as well as for duodenal polyps as well. Make sure and get your upper/lower scopes yearly, minimum.
I have 3 desmoids that pretty much have been stable for the past 5 years, so that's good news. But we still surveil them via CT scan (due to having a AICD I cannot do MRI's any longer).
Again, welcome!
Charlie