Rebe0505 posted:i will second ct barrister as to pouchitis symptoms but eliminate leaking at night.. but adding to the rest of his symptoms it starts to feel so irritated and like i have raw skin in there when i go..this can be really painful and pretty unbearable..
trading the uc for my present issues has just had me trade one set of ungodly problems for another set!! but if i rotate antibiotics i get some relief for periods of time..but its always a feeling of ok will this one work now..very unsettling..i have tried diet and it helped kept me symptom free or antibiotic free for three months but things changed and back to rotating antibiotics however i continue the diet.
hoping your issues are just normal healing and you do not have ongoing pouchitis/bcteria overgrowth..its no walk in the park!!!
I have had j-pouch for 23 years now. Had UC for 10 years prior to that. Pouchitis was not part of my life until about 13 years into my J-pouch. Yes, I watch what I eat at times, but when feeling better always dip into foods I should avoid.
I wanted to respond to the pouchitis comments, as cipro used to work great for me, however, over time it stopped working and required use of a second antibiotic like flagyl or another to be used. A few summers ago I got severely dehydrated and ended up in hospital where I decided to try paleo diet and stuck to it for a year. It did help and did not have pouchitis that I recall during that year. I still maintain some of the paleo ways, however, what I wanted to say was you may want to try staying away from wheat and dairy and use VSL3 DS probiotic. It's expensive, but very good. I believe it's all about the bacterial level in the pouch and being that we don't absorb normally, the bad bacteria multiply and then, I believe the flare ups occur. I also take a prebiotic to feed the probiotic (I know sounds nuts) but really, you may want to give it a try. The VSL3ds is expensive and no longer covered by insurance. It's considered over the counter. I just bought some today on the Blink health app and got at Walmart pharmacy. It was the least expensive. The ds is 900billion level, so well beyond others. Give it a try. The prebiotic I bought was Gundry md "prebiothrive". Just offering some ideas for you as I've dealt with it for many years. If I can save someone some trials and pain, awesome. Let me know how it works for you if you try it. Best of luck.