I'm in the same boat as Lance 619. Except I had my 1st Jpouch surgery 12 years ago when I was 20. I did the handfuls of meds everyday for 5 years before I ended up needing a emergency colonectomy. I did everything the doctors wanted me to do and they still couldn't and can't help me. I occasionally try a new med thats working great for others. But it's never successful for me. So I have chose to manage chronic pouchitis with diet and a healthy knowledge of cannabis strains. Its gotten me farther than the docs have been able too. And they admit it. Unfortunately I'm now dealing with a painful kidney mass on one kidney and another functioning at around 50%. And docs still uncertain of what avenues to take due to the massive amounts of scar tissue and adhesions I've had over the years. The point of that was sometimes everything keeps falling apart. And if you need to eat a cookie to get through it. Well then eat a cookie and laugh about it 
Good luck everyone