Reply to "New member, Old poucher, new problems...."

Jan DollarModerator, RN, retired

Presumably, the prednisone is not for the long term. The dose is high-ish, but not too bad considering what is going on with you.

I was in a similar situation with serious chronic pouchitis and I was on a rotating antibiotic regimen with “good enough” effectiveness. I was already on a biologic for my enteropathic arthritis (I had gone through 5 of them), but I got this ulcerating pouchitis anyway. My GI recommended Remicade infusions with low dose oral Imuran. My pouchitis healed and I did not need any more antibiotics. That was about 5 years ago and I am still doing well. I still have joint pain and spinal issues, but I am satisfied with how my life is going.

The only reason I did not want the Remicade was because of the hassle of the infusions and the fear of a reaction. But, I just schedule my life around those infusions and consider them my “spa” day!

So, count me in on team biologics!

Jan

5/6/219:54 PM

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