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Reply to "New member, Old poucher, new problems...."

*****. Latest Update*****

Well, I'm still struggling with inflammation, hard to pass stool, etc.... The probiotics I have been taking have really cut down the gas/bloating...but the underlying problem still remains.

Again, I see the new (mine retired) colorectal surgeon about the dialation June 2...couldn't get in any sooner.....



But, my GI wants me to consider a biologic, and he's leaning towards Entyvio...

My blood work leans towards Crohns the way he interpreted it to me. He started me on 30mg daily of prednisone....long story short...my body HATED prednisone back when I had my colon.

I was on large doses however and ended up with toxic megacolon before I eventually lost my colon.... I have AVN in my left hip due to the steroids as well...not fun...so.....not happy to be on prednisone in the least.

So, I have to decide whether to start a biologic. He thinks doing nothing will not turn out well...my inflammation is severe...but limited to the pouch it seems???

Any thoughts on what you would do????

I thought I beat this 20 years ago...I think it can still be managed but I'd rather not lose my pouch...sound like biologic time??? Again, he's recommending Entyvio.

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