Skip to main content

Reply to "New member, Old poucher, new problems...."

It’s unfortunately common to have ‘nonspecific’ IBD diagnosed later, after initial dx is given with more conviction. IBD is probably a spectrum of disease, not the two distinct entities we’re used to talking about. Usually the distinction is supposed to be ‘geographic’: colon only, inflamed mucosa only=UC. Anything outside colon or inflamed full thickness bowel wall=Crohn’s. But it doesn’t always work that way; there’s ‘backwash ileitis’ and all kinds of other in-between weird stuff. And pathology isn’t an exact science until you’re on the slab.

I don’t think it matters what it ends up being called, as others have said. Treatment is based on symptoms and the presence of lesions, not so much their location (unless they were only in the pouch—then you often start with suppositories and foams instead of systemic meds).

Your scope gave you good reasons for the symptoms you’ve been experiencing, and yes, COVID’s immune hijacking of the body extends to the GI tract. Treat the symptoms and keep on living, regardless of what they call it, because there isn’t any benefit to doing otherwise. A good gastroenterologist can be a lifeline; sounds like you’ve got one. So glad you did well for so long; it sounds like you can again, with the right help.

Best of luck!

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×