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Reply to "New loop illeostomy sucks!!"

I used the nu-hope belts, not the useless thin belts that they give at the hospital. I had two types, the nu-comfort support belt that was more flexible, and thinner, and the nu-form that felt more stiff like a hernia belt. I needed these belts, because my stoma was not level with the skin, it was very retracted into the skin. The shape was very odd too, did not look like anything I saw on the internet. There was no visible hole as it was in the permanent ilesotomy, The hole was somewhere bellow, hidden, shooting directly onto the retracted skin. It looked like they tried to make the smallest hole and pulled it outside as little as they could. It was a monster.

It was so tiny and retracted that I always had to wear the belt tight, even at night, to press the convex wafer for it to push the skin back. I wore the stiff one for an hour after changes to make the ring stick better, and the flexible one at night.

Even with a belt on 24/7, I changed on average every day! Once I changed three times in one night. There were many days I had to change twice. I remember, if it would start hurting within minutes of a new change, then I knew that I failed, and had to change again. Otherwise the skin would break even more. I used so much adhesive remover spray and wipes that I had to get a new prescription for the insurance.

Jaydog, I hope things will not be as bad as it was for me, I read that many people can get 2-3 even 4 days with a loop. If you are changing every single day, and that is what you need to keep your skin from breaking down, you are not alone. Do not count days, you should change as soon as your skin feels uncomfortable. You need to use a lot of adhesive remover spray to prevent your skin from irritation of frequent changes, but a generous amount of the spray can solve that problem. Before you run out of adhesive remover spray, ask your nurses for more. I had to use the adhesive remover wipes after I run out of all the spray, and wipes are harder to work with, but they still prevent irritation. Good luck.

Last edited by Former Member
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