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New Diagnosis??

Good morning,

My name is Lori W.  I joined this site about 19 years ago when I first had surgery.  I have not been a regular visitor, because I have not had any significant issues regarding my surgery until now.  So, I thought I would reach out to see if anyone has experienced what I am going through now.

I am 54 years old.  I was diagnosed with UC in 1997 and treated with medication for 3 years.  I had a total colectomy with a J-Pouch in March 2000.  I have had a few bouts of pouchitis over the years and one anal abscess, the developed a fissure, so I had corrective surgery for that.  I had one hernia on my scar in 2012 and surgery corrected that.  Otherwise, I have been relatively healthy.

Since August, I have been off and on with issues of pouchitis.  I have been on Cipro 500 mg 2x a day and Flagyl 500 mg 3x a day 3 times now.  I had a CT scan about a month ago that was evidence of colitis, crohns or cancer.  Symptoms continued when I stopped the medication last week.  I had a flexsig in the office yesterday and the doctor took multiple biopsies, to see what is going on.  Basically, what he is saying, is that it's possible I have now developed either crohns, colitis or indeterminant colitis in my small intestines, above my pouch.  He said my pouch was relatively clear.  There was a small amount of inflammation still at the bottom of it.  But he is most concerned over the inflammation in the small intestines, above my pouch.

I guess I am really just confused now.  I thought that a diagnosis 20 years ago of UC and the removal of my colon "cured" that disease.  I didn't know that it could come back in other forms in my small intestines or that I could suddenly get crohns now or anything else.  I'm trying to remain positive and not jump to any conclusions at this time because I don't have definitive diagnosis yet.  He said it would be a week to 10 days for the biopsy results.  But when he started talking about going back to a gastro for treatment of UC or crohns again, my heart just fell to the floor.  I have been so healthy for so long...I guess I just didn't know that this could happen.  And quite frankly, at 54, I'm not sure I have the stamina to fight this ugly disease that I had 20 years ago.  So, I'm feeling a little out of sorts and could use any information/advice/encouragement that anyone has to offer. 

Sorry this is so long.  I tried to keep it brief, but was unsuccessful.



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