To Scott F., Thank you for your opinions and help. I wrote before asking for advice and you and Jane are always willing to help. I think I'm facing another episode of Pouchitis and Cipro doesn't seem to work anymore. I can't take Flagyl because make me sick, so I don't know what to do next. My GI kind of gave up on me. He finally prescribed me Cholestyrame (Questran) and was helping but not anymore. Any suggestions for me Scott? Your help always seems to give me hope and good results.
Thank you so much for your priceless help!
To Jordan: I feel so close to you. I'm experiencing pretty much the same symptoms. Since I had my JPouch (2014), I had all kind of issues, pouchitis, cuffitis, an obstruction ended on a big surgery, constant pain, frequent bathroom's visits, isolation, depression, meltdowns, even marriage crisis because all these issues. The only difference is on my case VSL#3 seems to work ok. My advice to you is try to find the good combination of antibiotics that work for you. Please, don't give up on your Pouch. I know how hard is to keep our peace of mind and positive attitude when you feel so sick, but I strongly believe it must be a meds formula for each of us. On my case, haven't find it yet, but I'm. Sure I will and you too.
Best of Luck,