Reply to "Needing To Hear from other Old Timers"

I also got my J Pouch done at Mount Sinai Medical Center in NYC in 1992, same day as KangaRoe and by the same 2 surgeons. If I recall correctly my step 2 was done the same day as her step 1.

My issues in these 22 years have been a little different - chronic pouchitis for 20 years treatable with rotating antibiotics. I have remained fairly consistent in my responsiveness to antibiotic treatment with the exception of a 2 year period 2011-2012 when my diet was poorly controlled.

I had similar symptoms to yours in 1998 and had the first of two J Pouch surgical revisions done in 1998, the second was done in 2000. I felt like the stool was hitting a wall and this was apart from pouchitis issues. Dr. Gorfine, who performed these 2 surgeries, determined that a "septum" or wall of tissue had developed in the pouch, blocking the normal flow of feces through the J Pouch outlet. The two surgeries completely resolved the issue.

More recently in 2012 my J Pouch inlet strictured and this was resolved through a course of Entocort and changing of my diet.

KangaRoe is right about Mount Sinai. They fixed my issues and it is because they have very knowledgeable people there. They have seen it all.

You should see your surgeon if possible or be examined as soon as possible as you MAY have a surgical issue like what I had in the late 1990s. Good luck.
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