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Reply to "Needing To Hear from other Old Timers"

Was the poster child for the perfect J pouch til things happened in 2012 (started feeling "off" in a GI sense that year, developed an abscess turned perianal fistula, have had strictures... ). I'm now on Humira and a steroid taper.

Definitely could be a stricture. My GI said "older" pouches (age of pouch, not patient age) are coming out with new IBD issues. No longer do they say "curative" surgery, he counsels his patients there's a 50/50 chance in the lifetime of your pouch you will have "some" issue (maybe a mild pouchitis to new dx of Crohn's or other IBD things).

My narrowing issues may likely have been related to lower inflammation and the fistula, so we are giving the biologic a chance. The Medrol is making me feel a million times better, too.

Come back and let us know how things are doing.

And FWIW, Scott mentioned some things for changing stool consistency, but the bulk Metamucil would've given me would have made it impossible to clear my pouch when I was narrowed/strictured! However, I've never needed Psyllium or things to slow me down, and the older my pouch gets, the more finicky it is, and sometimes things tend to be too thick for my liking. I occasionally take a magnesium supplement or a dose or half dose of MOM to thin things up. Magnesium is non-cramping, and the only thing I tolerate.
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