Unfortunately, sometimes there is a certain “disconnect” when dealing with large facilities. They tend to run sort of like an assembly line. While they can be extremely efficient, accurate, and qualified, they can also be off-putting. Not always, just more likely. I think that in your state of mind you are better off getting your first second opinion from the local guy who was Cleveland Clinic trained. If that is a bust, then proceed with Cleveland Clinic.
You don’t want to tie yourself in a knot with just the consult phase! And, yes, please feel free to keep posting here, if only to vent.
Jan 