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Reply to "need advice on bcir"

The BCIR works really great for some people. Others like me, it does not. I had an ileostomy transferred to a j-pouch. My pouch failed in 2010, and in 2011 I went to a permanent ileostomy. It worked great for awhile, but I started having a lot of leakage issues, so I gave the BCIR a go. It was a HUGE surgery. You’re literally cut vertically and horizontally. You have to stay in the hospital for 3 weeks after surgery, and that was really hard for me. Afterwards my body rejected the BCIR. I had constant pouchitis and blockages. My stomach was so swollen that I looked 8 months pregnant. Finally I had the BCIR removed in 2018, and went back to a permanent ileostomy. I’ve had 3 surgeries since, because the BCIR surgery so weakened my abdominal muscles that I have had 2 surgically repaired hernia, and two prolapsed stomas. The general rule is that if you have ulcerative colitis the BCIR might work for you, but if you were diagnosed with Crohn’s then it will not. I was originally diagnosed with ulcerative colitis, and it worked horribly for me. That’s not to say it will be that way for you, but it’s a huge chance to take, and a major surgery.

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