My daughter has been sick since 2008 and I would trade places with her in a heartbeat if I could. I get so frustrated in that I am doing all the reading and searching for answers. She will not discuss her health with me. She lays sick in bed, hospitalized, on what ever meds her doctors decide to throw her way or don't throw her way. And she does no reading or research into her own disease. Her GI has not shared with her or us, any "life" plan-how to take care of yourself in a way to try and avoid ending up in hospital. They have not created a relationship where they get her into their office at start of issues, nor do they prescribe over phone or give her medication as a proactive approach. I am so frustrated!!! She gets angry with me if I ask doctors questions, and she is frustrated with my attendance at hospital. I try so hard to just sit, knit,....I am not adversarial....I am home today with migraine and heartache. If I am there she doesn't talk to me. At what point will she realize she can take some lead in her own life and disease? That she has the right to question her doctors, to research diets, to be proactive in her medical plans?