I was diagnosed with UC when I was 11 in 1989. By the time they knew what it was I has a total colectomy and reversal. When I was 24 I started having problems related to Crohns. Ended up having major surgeries and was left with the ultimate decision to have an ileostomy. Once again I had to adapt to a new normal. It was a lot of trial and error with the ostomy but I did it. Went back to nursing school and graduated. Which brings me to now. Last year in had a horrible bout with pouchitis.I had no idea what was going on except i was habing the urge to have a bowel movement and that hasnt happened since 2007. I took flagyl/cipro and it cleared up. I was sent to a surgeon and she told me the worst and all the complications instead of anything good. I said forget that. Well now I'm having problems with pouchitis again. I have an ileostomy and a J-pouch that hasn't been functioning since 2007(except for the oÇcasional bouts of pouchitis and then things happen in that area that shouldn't). I'm having the urge to have a bowel movement and massive amounts of clearish draining come rushing out of my rectum. This is not normal. Unfortunately this pressure and drainage has caused me to miss work and people get irritated due to not understanding what is going on. So my question is this, has anyone had the J-pouch removed? I need to know what I am up against because this is not quality of life. What was the recovery time and have there been any new complications due to the surgery? Any information would. Be great.
Thanks.
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