We haven't heard from you for a while and I am wondering how you are doing? I hope you are feeling better. Have you found any better ways to live with your j-pouch or have you taken steps to have further surgery?
The same goes for everyone else that is having problems with your pouches. I am going to wait until my next Mayo appointment and will be discussing future options with my GI and having a surgical consultation.
In any event I hope you are feeling better.