Oh Joanna I certainly feel for you! I have had a j pouch for almost 8 months, now and it has been at times very difficult. Still not sure if it was the right decision for me, as well! I had a prometheus test (blood work) and all the markers came back as crohn's but I my biopsies were always UC. Not sure what to do next.
What is CFS stand for? I wish you well and keep your chin up! I always think it could be worse!