barefootbri posted:david, im literally brought to tears from your story as I do know what you’re going through and have a similar story myself.
do you think you’re allergic to any of the medications you’re on? how are your bms after each entyvio infusion?
what is your diet like? are you on a good probiotic? staying away from bubbley drinks, caffeine, sugar, fried foods? I too was at the verge of death with my colostomy bag and found that diet is really key for us.
I hope you find relief soon! my thoughts are with you,
bri
Hi bri! Thanks for reading my story. I feel like the Entyvio is helping definitely. It kept me in remission when I had my colon. As far as diet, I don't drink alcohol (it's super rare for me to even have a glass) since i got diagnosed, I stay completely away from fried foods (only a handful of greasy foods in the 8 years I've had UC), I rarely drink soda but I do treat myself to a sprite occasionally (once every two weeks), and sugar I swing back and forth. I love smoothies they seem to work for me pretty well, but the sugar content can be high if I don't make my own (like when I go to Jamba or nektar). Where are you at right now in this process? J pouch? Permanent bag? In between surgeries?