Skip to main content

Reply to "Mushroom Drain"

Hi Shane199. How did your June 15th surgery go? I'm also a patient of Dr. Remzi and had my pouch redone in March at the Cleveland Clinic. I had a leak at the hook up (again) and now have a mushroom drain tail or two. I've had mine since March and will probably have it another 6 months before Remzi decides if he needs to redo the pouch again or if the holes are healing on their own. Somedays the pain is unbearable. I'm sad to say I'm happy that I'm not alone in this. It's so confusing for me to know if I should be taking pain medication or buck up and push through the pain. What pain is normal/expected and what pain is alarming. I'm constantly having to get to know my body again right in time for things to change

 

Did anyone notice a correlation between eating and increased pain? Even though my J pouch is taking a little vacay, I feel like it get stimulated and hurts when I eat.

 

Thanks for sharing! And I would love to here how your surgery went. Say hi to H50 & H51!

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×