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Reply to "Multiple Stoma Sites"

If you go back to an ileostomy, an ostomy nurse will evaluate your stomach and help you determine what might be the best location for your stoma.

I personally have had 4 stomas, and they've all been in the same site:  #1 was an end ileo in '93 for colectomy; #2 was a loop ileo for jpouch; #3 in '17 was an end ileo when my jpouch was disconnected; and #4 in '18 when the stoma was unexpectedly revised during jpouch removal surgery, due to "kinking" behind it.  Like you mentioned, the stoma is in an indented area - had I known it was going to be revised in '18, I'd have asked for it to be moved to the other, flatter side of my abdomen.

But thankfully, my stoma is longer now - a very good thing that you should ask your surgeon for - and I've learned how to deal with the indentation with the help of an ostomy nurse and on-line support groups.  In addition, ostomy supplies have come a very long way since my first one in '93.

I'm sure there are more folks out here who've had their jpouch removed and therefore have had 2-3+ stomas who can share their experiences with their site locations as well.  It sounds like you've been through an awful lot - I hope you can find a resolution soon - good luck.

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