I just got off the phone with my Doctor and the news does not sound very good, although he wants to review my MRI films with a radiologist that he "trusts" and also compare it to the CT Enterography study that was done at St. Rafael's Hospital back in 2008, to see if there has been any progression from one study to the other.
He said that the MRI showed "significant" thickening of my bowel in the area where my ileum connects to the J Pouch. He believes that this may be due to "fecal stasis" or the stool somehow not passing properly from my ileum into the J Pouch. He mentioned that there is a "narrowing" of the bowel in this area and that may be what is causing the fecal stasis. He said he wants me to get a CD burned of the prior 2008 study and he wants to compare it with yesterday's MRI study with his "trusted" radiologist within 10 days.
Meanwhile, my latest attempt to get off antibiotics while taking Entocort has been unsuccessful. So he told me to resume taking antibiotics with Entocort until further notice. He said that the maximum dosage on Entocort is 9 mg and I will derive no additional benefit by increasing the dosage. He said it may take more time to work on me. So not to give up on Entocort yet.
Needless to say this news has me fairly upset because if this situation is being caused by a structural issue, the writing is on the wall that I will have to have surgery and/or an ileostomy to correct it.
Has anyone else here had an issue like this?