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Reply to "Mourning & PTSD"

OMG! Sharon, I thought I had it bad.  I also had a vaginal Cancer but fortunately it was found quickly and was in the end CIS.  Originally it was staged at a 1A.  God, the story, I have not given it much thought in 20 years!  My son is adopted.  I had been pregnant a few times but always had a miscarriage.  The last time I was pregnant, I was 29, had been doing boat loads of fertility drugs.  Got pregnant.  Was 18 weeks and the baby was 9.  Failure to thrive.  I was on bed rest for 6 weeks for nothing.  But the doctor I was seeing was an idiot.  Never told me I had cervical displasia and needed to be seen by an oncologist.  But anyway, I had what they called a missed abortion, so they had to go in and do a D&E.  I find it weird that you having Cancer at 23 that no one told you you were DES.  They can tell just by looking at your cervix.  Also during th 70's and 80's all GYN's were supposed to do a stain test.  I knew I was DES exposed since I was 16.  It should have been a no brainer for the oncologist or your GYN.  Where in the states are you from?  The other issues I have had, God, the list is endless.  Basically all of the Sid effects except the real bad Cancer that was killing girls at 17-24 or so.  It was an extremely rare cncer, I forget which one, but it is usually seen in 60 year olds!  It was ad.....carsonoma  A very dangerous one.    Do you know which Cancer it was?  Because it was only seen at this young age in DES daughters.  Thats how the whole thing got started.  there were two doctors at the University of Chicago who discovered the whole thing.  One was a Dr. Richard and I forget who the other guy was.  There are really old by now.  When I was diagnosed with my Cancer, of course everyone all over the U tied States ebates a look/see, so my slides where all over the place.  Eventually they found their way to Dr. Richard who was at Columbia Pres at that time.  Head of pathology.  He looked at them , called my doctor and the day before I was to have a hysterectomy, cancelled it!  I was 33. But my side effects, serious hormone issues, pin point cervix, tiny uterus, inconsistent periods, extremely painful periods.  I basically had all the symptoms of endometriosis but with out the adhesions.  It was so bad that I was on Tramadol and some other powerful drugs for the pain.  It was endless.  I've had hot flashes forever.  Now, is HRT safe for us, The short answer is no.  However to have the symptoms I was having, it became a quality of life issues.  We are at such a high risk for breast cancer, but I can deal with that later if I have too.  But you already having a serious GYN Cancer, I'm not sure what I would do.  Depends on how bad your hot flashes are.  Maybe you could try it for a few months just t calm them down.  I believe you and I are the same age, 60?  I'm thinking we should start a different page for you me, TE Marie, and a few of the other women, just so we can discuss this and other female or kid issues.  It's too bad they you don't have children, but having your husband's kids, I'm sure gives you the whole mom experience.  Why did you move to Paris?  I need to get back there but the Parisians are so mean!  Had more problems with the language there than any where else I've ever been!  Gotta run.  Let me know if there ism  way to send a private note, I'll give you my email.  Now that I have put my entire personal history out there, haha!

 

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