Reply to "Managing Pain in an Opioid Crisis World"

duck11 posted:

Sorry to here you are in chronic pain--it sucks. I'm not clear what kind of pain you have, and the cause. Is it the fissures and the absesses causing pain?  Is it that they know you have a clear cause for your pain and can't help, or they don't know the cause and don't "believe" the pain you are in? Either way, sounds like you need a more sympathetic physician. I have a prescription for tramacet but it is specifically for bowel obstructions and chronic pain from adhesions. My doctor calculates how many to prescribe based on a calendar of the obstructions I keep. They do help my quality of life I think, as I would otherwise be in and out of the ER all the time and not sleeping well due to pelvic pain.

With the removal of the large intestine and the absorption role it plays, and coupling that with the fissure and abscess outpatient procedures, it has created leakage.  Now I have perianal excoriations.  This is basically open wounds in the external anal area, one of the most bacteria infected areas of your body.  Currently I have approximately 15 sores in the area.  This pain is almost as bad as the ulcers in the intestine that UC brings on.  I feel all my doctors know about these but because of the Opioid crisis and very strict rules that the government has put in place, they refuse to view this as lifetime pain.  I have tried 5% Lidocaine topical which provides some immediate relief but, as we all know, the next bathroom break is approximately 15 minutes away so the topical is wiped away.  I just don't think I should have to have life changing surgery to stop this.  I already did that with the IPAA.  They need to recognize my pain and treat.   

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