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Reply to "Low quality of life with pouch... not sure what to do"

I waited 3 1/2 years with chronic pouchitis before having the pouch out.  Antibiotics CAN be harmful, but its a risk reward problem.  If you are okay with the potential risks and they make you better, then great.  After 3 1/2 years on antibiotics I still had a subpar quality of life.  I saw four surgeons about pouch removal and 3 claimed they could fix it.  But I was done.  I didn't want to waste more of my life on trying yet one more thing.  I felt like I had done enough and just wanted to move on.  Everyone hits that point at a different time, some never hit it.  Some would prefer to do anything and everything to make the j-pouch work.  Any of these is fine choices, its all about what you want, what you are willing to do and in what time frame. 


I was in my early 30s and wanted to have babies.  I didn't have a lot of time to wait for something to work, and I didn't want to risk my future fertility with a lot of surgeries to fix something I was perfectly fine getting rid of...Pouch removed in 2003 - no GI issues, no drugs, no diet restrictions AND - two beautiful children now almost 10 and 7 1/2.  It was the right call for me.  Wish I had done it sooner.

 

Jill

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