Reply to "Low quality of life with pouch... not sure what to do"

SolomonSealMember

Here I am, 6 months out. About two weeks ago I had a scope. There were a few apthuous ulcers, but my GI described the pouchitis and cuffitis as only "mild."

The thing is, my symptoms are not mild. I'm going to the bathroom about 3 times nightly and around 10 daily. My underpants are often soiled, and I am bothered by pain and urgency.

Taking VSL twice daily. Using lomotil about 2-3 daily. Taking pain meds pretty frequently in order to get sleep at night. I already failed cipro and flagyl.

I know I need to be patient... but toilet-centric life is not OK... I feel like I'm back at square one with UC sometimes... just that this doesn't include blood so nobody will take it seriously.

10/5/151:02 PM

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