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Reply to "Low quality of life with pouch... not sure what to do"

I am wondering which surgeon did your j pouch?  Did he/she staple or hand sew to the rectum because that can make a difference...especially if something comes loose before fully healing or if they leave too much (that is why some prefer musectomy)?  As my GI told me before my surgery, surgeons like to cut and aren't great at problem solving, unless it involves cutting.  So he told me never to do anything until I check with him and he has exhausted all options.  To this day I trust him most, because when it was time for me to have surgery, he was the one who encouraged me the most.  I know the CC frowns upon it, but maybe you can get a second opinion from Dr Remzi, if he didn't do your original surgeries.  I definitely would not do anything until I had a pouchoscopy because it might be something that can be easily corrected, which unfortunately means you will need to suffer a while longer until you can return to the CC.  Since antibiotics provided some relief, it may just be that you need to give things more time.  I know things were rough for me until I switched to a bidet and used calmoseptine religiously and then the cuff started to get better and every thing started moving in a positive direction.

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