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Reply to "Low quality of life with pouch... not sure what to do"

I think you did the right thing by going back to see the doctors now instead of waiting longer.  I waited too long and ended up with c.diff along with cuffitis at a year.  That being said 2-3 months is still not much time.  I was told 8-10 and didn't count everyday as it was depressing.  I was in pain but found out taking Norco helped slow things down, along with antispasmodic, loperamide (Imodium), metamucil gel caps (I can't drink it - gag.)

 

I also found out they sell underwear at Walgreens.  They aren't the expensive kind so if you need to throw them away - no big deal!  The big box stores like Target and Walmart sell them too but who wants to walk so far when they don't want to use a public restroom?

 

The best advice I received from this site then was to not look for weekly improvements.  Look back a month and see if you are doing better.  We can do better for a few days and then fall back a few. 

 

Another J-poucher I met on here went back to an ileo at 6 months.  There was no way he could do his job as things were. Down the road you might think of just going back to an ileo and leave your j-pouch where it is.  It is my understanding that you do not have to remove your j-pouch to quit using it.  There's others that go back to temp ones while resting their pouches, they don't all go back to them and make the rest permanent.

 

Thanks for reporting back.  It's good to hear the antibiotics are helping.  Your pouch is made out of a body part that was use to passing the food along quickly and now the brakes have been applied.  It takes training for it to learn the holding part.  

 

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