Hey guys, short update.
I was able to get two additional second opinions: I'm being told that my situation is not what it is supposed to be but that I need to make it through more months (6 month point) believing that things will still work out well.
I got sick of feeling so poorly, so I decided to give the Cipro/Flagyl course my surgeon and GI suggested a shot. I started last Wednesday, and by Friday/Saturday I noticed changes.
My BM's are much less gassy and are rather easier to empty. I have been able to step the lomotil back from 4 tablets to 0 or 1 daily. My BM frequency is lower than it was before the starting the antibiotic course.
Leakage during both day and night is still an issue (all my underwear remain soiled). I am still getting crampy/spasmy rectal pain.
I am quite happy to have some improvement to my quality of life, but obviously still upset with the daily leakage and the pain.
Does anyone have experience with early pouchitis? I feel like I have had these symptoms since shortly after takedown. I have read several studies saying that early pouchitis is more likely to be chronic and/or refractory...