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Reply to "Low quality of life with pouch... not sure what to do"

I agree that 2 months is too soon, but it is a warning that you need to be proactive in your approach, as the more typical healing process is not taking place.  You have several times mentioned nerve damage and J pouch surgery does allow this possibility.  Of all your symptoms the incontinence would concern me the most.  I speak from experience and incontinence was what caused me to have my J pouch removed. I pretty much knew from the first that it wasn’t going to ever stop leaking but I tried everything from antibiotics, suppositories, cotton balls, enemas and so forth. The surgery had damaged me and there were structural issues. Some things helped a bit for a while. The J was disconnected at about 18 months and removed about 24 months after the takedown. Now have end ileo and am satisfied.  Really the only thing that helped was tincture of opium but I still leaked and leaked with butt burn, really a very difficult problem. One can adjust to life with a poorly functioning pouch but it is an individual choice as to how much one wishes and or needs to modify ones life to accommodate the pouch. Fortunately for most this is a pretty minor adjustment but for me I saw it was a huge change and therefore opted for removal.

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