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Reply to "Low quality of life with pouch... not sure what to do"

I am already with Cleveland Clinic who did my first op. Performing my own digital exam, I certainly do not have an anastamotic stricture at my outlet at least. I had a pouchoscopy 1 week post op and my surgeon did not say he saw any.

 

Given that some of my issues are spasming rectal pain and frequent leakage, could I have nervous damage? Would such damage be permanent? I had urgency and leakage of bloody mucus before takedown. The bleeding resolved after takedown though (probably diversionary cuffitis).

 

I had a small sterile fluid collection after the first op, but it was drained and already sterile, so I don't think that would have anything to do with it.

 

Do some people's pouches just not work well?...

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