Frances,
I do understand..This struggle is hard enough without having to deal with red-tape-administrative-fools who are so stuck with their noses up code books that they do not see living, breathing human beings and the end of the file numbers.
ARggggg!
All that you can do is write more letter, post on facebook a plea and try to get enough people to sign a petition that they will change insurers if you are not covered (money talks), or yell and cry (you are already doing that and it may help short term but in the long term it does nothing)
Cry, scream, yell...but do not lose hope. We are here...We are here (my favorite line from Horton hears a who)...it means that you exisit to someone and that you are special to all of us.
Take care of yourself and keep fighting
Sharon