Well when I told my other doctors that I was denied by ins to cover the medicine that worked, by the way is 500.00 cheaper than stuff I take now that does not work. The other doctors were very angry and said that they wanted to write letters in my behalf, which really moved me and they see me a lot and really know my day to day living. I was told to write a letter myself going into more detail than the form they fill out gives you. They also asked me to ask my specialist at Cleveland clinic to write a letter. I know how his office runs the when I asked about the letter seeing about getting them to pay for it, he asked if it was a long form. I told him I had no idea I have never done this before. He told me to call the next tues afternoon and talk to his secretary she should not be really busy then. I waited and try to explain what I needed and she said she already did it and I said no, that there has been forms but that one has never needed to be done. She was not happy with me doubting her so she looked into my file and said that I was correct and gave her the number to call and she asked what it was for and I tried to tell her as short as I could.
They say you should know when they fill out the form you should get a answer within 72 hours I waited over a week and called her back and guess what she had not done it. So I again gave her the phone number went over why and she said she would do it right then and call me back. Never got a call until I called the number myself and she said it was denied with the info they received. I know she answered the questions and he signed it. Sat at the park in my car by myself and just cried I needed that time to be alone. My husband still thought I was at my moms so I just sat there and tried to digest and figure out what to do next. I am tired of quantity of life I need some quality to. I called my psychiatrist which I have never done and I see every 2 weeks and I call it my safe place and I am so lucky to have her. I hold in everything so people don't worry but with her I can tell her everything.
She got back to me within 30 min and when I told her she was furious and said she was going to write a letter also about what she sees and how I am every 2 weeks. I had to wait to get denial letter for case number and where to send appeal to.
So she said to write one myself with all details but not sure what to put in it. I cant go back to when I had UC. So I am trying to write it pertaining to the last 4 years when I started the medicine that worked and how this other medicine that I have been trying for 3 months does not work.
Do you ever get so tired of fighting about things that you need that will just help you have kind of normal life.
So sorry to go on and on.
I hope your taking it easy and getting better every day. You are so strong and caring.
Sending you hugs prayers and good thoughts. Please let me know how you are doing.
Frances