Hi Sharon,
To give such companion and support to someone you don't know means more than you will ever know. I found out last Thursday about the denial and the only one no's is my husband and he did not know what to say so did not say much. My sister is my befriend asked me last night and I said I have not heard and so did my mom. I cant tell them before I figure out what to do. I had a ileostomy for the longest 3 months of my life after removal of colon while j pouch healed and I know I cant live like that again for sure.
I did call my psychiatrist because I was loosing it and alone when I got the info. She was amazing and called me right back and was angry that they denied it. She sees me every two weeks and sees what I go through even knows the way I walk how things are going. I am able to tell her everything and feel so safe. I thank god for her. She said she was going to start a letter to ins company to explain from her point of view how I need them to cover this medication. I did not even have to ask her. She told me to write a letter explaining what I go through. I know its a form that he fills out but knowing there office the office person filled it out and he just signed it.
I am so tired of fighting for every little thing in my life. I got diagnosed with Hashimoto last year and they are keeping an eye on my ANA because it keeps getting higher with every blood test. I am falling apart and I keep it all inside except with my shrink. I feel everyone in my family and the couple friends I have left do not want to talk about it.
Is this all that I have now leaking 90% of my day butt burn bleeding from that. Painful spasms that come and go?
I just need so peace and happiness.
Please forgive me because it does sound like a pity party for me.
Thank you so much for taking time out of your day to say such kind things. They mean so much.
Frances