Haha! excellent post. maybe the J-date site, considering jewish people get these diseases disproportionately, could have a sub-set?
yes, the understanding part is so tough. i've learned to go it on my own and not tell people. if out to dinner and i need to quiz the wait person about ingredients i'll just say i have the gi system from hell.
about diet--when i had the j and chronic pouchitis i had no refined sugar, no brown sugar, no maple syrup or honey, none, none, none. also no shell fish. the bleeding stopped and pouchitis was less, but never gone. no sugar changed my life and even though i have a k pouch now i still won't eat it.
sorry, but i'm 68 and live in boston. stick with this forum as we are here to give you support and suggestions. has helped me beyond belief! j