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Reply to "Looking for others' experience with Remicade/Humira"

My son unsuccessfully tried Remicade pre j-pouch for his UC, but the thought was his colon was too far gone for it to help much.  Surgery came and after a great first 18 months with the j-pouch he developed chronic antibiotic resistant pouchitis.  He tried Remicade again thinking that with  the smaller pouch it could work.  But he had developed antibodies to it and broke out in hives, etc.  He did try Humira next and did not have any adverse reaction to it.  He saw a small improvement after the loading dose, but it was not sustained.  Now he is trying Entyvio and is diverted back to an ostomy while waiting to see if Entyvio will work.

 

Last edited by Momma
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