Allycat, dr.Milsom is no longer accepting insurance and doing mostly research from what I understand. Bosworth was recommended by the transplant dr. And as well as someone else. I never heard of Scherl. I'm not sure if he is still there, or he might be at Columbia Pres. I think Bosworth is high up on the food chain now. I forget. My head is swimming. I've had a headache for a week and have spent the last 24 hours crying my eyes out. I keep focusing on the worst. Im a realist and I know that PSC can be deadly. And I keep thinking I can not watch my baby die. I can't watch him go through chemo or a transplant. I have a pharmaceutical background so I know the drill. My head is in a bad place right now. But some how I will come to terms with is horrible diagnosis. I just need some answers and as we get set up at Cornell, I'm sure that they will come.
thank you for your input!
Aren't most cases of PSC slow moving? Like many years or even decades before needing a transplant? Is your son on Urso?