@ksr posted:I was diagnosed with FAP when I was 28. Hundreds of adenomas polyps were found all over the large intestine. My only symptom was rectal bleeding. No one in my family had or has FAP but me. A year later, it went to thousands of polyps in the large intestine, so my GI doctor referred me to a colorectal surgeon and told me I needed colorectal ileo-anal surgery then. He said if I didn’t have the surgery before I was 30, I would die before I was 40. I didn’t start growing polyps in my rectal stump or duodenum until 14 years ago. They are removed every year and more grow then they are removed.
It might be better to take out the rectal stump so less will appear? I read that islands of the rectal stump can grow back but I think taking out the stump might improve. Did the surgeon ever offer that or is that something you might be interested in???