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Reply to "Long term prospects of J pouch and FAP"

I was diagnosed with FAP when I was 28.  Hundreds of adenomas polyps were found all over the large intestine.  My only symptom was rectal bleeding.  No one in my family had or has FAP but me.  A year later, it went to thousands of polyps in the large intestine, so my GI doctor referred me to a colorectal surgeon and told me I needed colorectal ileo-anal surgery then.  He said if I didn’t have the surgery before I was 30, I would die before I was 40.  I didn’t start growing polyps in my rectal stump or duodenum until 14 years ago.  They are removed every year and more grow then they are removed.

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