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Reply to "Long term prospects of J pouch and FAP"

Pouch failure is not common, 2-20% depending on which study you read. Most failurs are due to chronic pouchitis or a later diagnosis of Crohn’s that cannot be controlled. FAP actually has a lower risk of pouch failure.

That said, FAP presents its own risks and the while the pouch is not as susceptible to pouchitis, future adenomas and carcinomas are still a risk. In addition, the risk goes up as the j-pouch ages. So, you still would need surveillance indefinitely. But this is true regardless of the choices you make.

It is scary to have limited options with no guarantees of success. That is a natural feeling. We all have to find what risks that we can live with. Fear is normal. Just don’t let it paralyze you. Good luck in deciding your next step!

Jan

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