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Reply to "Long term Cipro for Pouchitis"

I'm go to go with the theory that each of us is different - meaning different foods, different factors, different medicines work for different people.  Personally, I am able to each vegetables and fruit. (And I put tomato sauce on my spaghetti.) Raw veggies don't like me much, but I can do salads - just know my output will be higher.  I watch my sugar because that will trigger pouchitis in me.  I take Align every morning and am on Entyvio, Imuran, and Budensonide to keep my pouch happy. I take Amitriptyline and Lomotil at night  to help me sleep and not let my pouch keep me awake with urges to go.  These work for me.  I don't feel like I live in the bathroom anymore.

It has taken a long time to come up with this formula that is working for my pouch.  My advise is to find a good GI who is willing to work with you to find  what will make your pouch work the best for you.  Maybe it will be long term antibiotics or a biologic.  Don't be afraid to try something different and see what happens.

Just my opinion.  Hope this helps

 

 

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