Long term Cipro for Pouchitis

Hi Everyone,

I would really like to know if anyone on this forum has been on Ciprofloxacin long term and what their experiences are of using this antibiotic for long periods of time?

I had my J Pouch surgery 12 years ago and have been doing well since this time however I developed a severe bout of Pouchitis earlier this year which is not going away. I’ve tried Metronidazole which does not work for me but Cipro has been great. However every time I come off it (after 4 weeks) the Pouchitis returns with a vengeance. Now my specialist is saying that the best way to treat this is staying on Cipro long term.

Just looking for reassurance that this treatment is ok from fellow J Pouchers who have been there! (I am aware of the dangerous side effects of this drug but so far I haven’t experienced anything negative)  Much appreciated 

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